Hi Everyone,
I am a member on the benefit committee for the Rob Schriefer Trust Fund. Rob was born with a disease called Friedreich's Ataxia, which he was diagnosed with at the age of ten. Friedreich's Ataxia is a degenerative neuromuscular disorder which affects all mobility and motor skills. To learn more about Friedreich's Ataxia, click here.
Rob was an active adolescent who was forced into a wheelchair at the age of sixteen. For the past 25 years, this disease has taken complete control of his body, which has made him completely dependent on others for his daily needs and care. Throughout it all, Rob still has a great smile and positive outlook. Rob loves to be outdoors, go to concerts and travel to see his family. Rob is '96 grad of Wentworth Institute of Technology and a '91 grad of Saugus High School.
I am selling benefit tickets to an event which is on March 28th, at The Knights of Columbus in Lynn from 7-midnight. The benefit is to raise funds for a wheelchair accessible van, so Rob can "escape his captivity once in a while," and enjoy the world around him like everyone else. (He relies solely on state funding and limited financial help from family.)
The event will include live bands, food, raffles and a silent auction. The benefit tickets are $25.00 per person, and anyone who purchases a ticket will be entered into a drawing for a set of Red Sox tickets (whether you attend the event or not).
I am also looking for auction items and donations to help raise money for this special charity. If you or anyone you know can donate a signed sports item, sports tickets, or gift certificates for a restaurant, please let me know as every item big or small counts.
If you have any questions, want to purchase tickets, or donate an item you can e-mail me (k.kimberlywormstead@comcast.net). Additionally, I have flyers for the benefit and can email you one.
If anyone would like to donate to Rob's fund, please send donations to:
Eastern Bank, c/o Rob Schriefer Jr. Supplemental Trust Fund, 441 Main St., Melrose MA 02176.
Your support is greatly appreciated! To meet Rob, check out the video below.
Thank you for your help,
Kim Wormstead
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